Fall has arrived. Usually I love it. It’s boot weather again so when I feel like wearing compression socks they are hidden. Football season is back. I can feel like I’m in good company with my football buddies so my couch doesn’t feel as lonely even if it’s just me myself and I. Drinking coffee seems more natural in the cooler weather. But yet this October arrived and I’m just not feeling it. Hopefully that will change soon enough…
October is also dysautonomia awareness month. You know this already if you’ve been following my blog for a while, or if you yourself have dysautonomia or a loved one you know does. Dysautononia is the umbrella term for one of my conditions, postural orthostatic tachycardia syndrome (POTS). This year we have put Colorado on the map! We have so many awareness activities set for the month. I accomplished my mission of getting the City of Denver lit turquoise! For four nights, October 18-21st from dusk until 11PM each night the Tower of the City and County of Denver building will be lit up turquoise for the first time ever.
I also had a vision of a cocktail fundraiser for dysautonomia. While I couldn’t take it on from A to Z like I would have done in my former life, fortunately, parents of a teen POTS patient decided they were all in. I met Tanya and Eric a few months ago…I shared my initial research and that I couldn’t take on the event. They embraced it and are taking it to heights I never imagined. Dollars for Dysautonomia will take place on October 19th. We – more like they since my contributions have been limited – have raised over $10K and sold over 100 tickets. For a first time event I think we have crushed it – we initially envisioned the event as a raffle but instead it will be a silent and live auction since we have had so many awesome in-kind donations. We have some sponsors and lots of donors. It will be informative as we will have a local expert speaking, it will be fun with a photo booth and live music, and of course we will be raising money through our auction items which include condo stays, gift cards, a signed Kobe basketball, and so much more. We are truly humbled by the support! If you’re interested in supporting us – be it by spreading the word or donating, the link is: www.crowdrise.com/dollarsfordysautonomia.
Colorado Springs also got lit up turquoise this year. I also got billboard space donated again this year around the Denver metro area again! At least three cities received proclamations (I didn’t request any this year). And to boot two local businesses are supporting our cause (thank you to Tanya!). You can dine and donate at Modern Market at Southwest Plaza Mall in Littleton from 5-8PM on October 24th. Just mention “Dollars for Dysautonomia” and 50% of your final check will be will donated to Dysautonomia International. Then if you’re into yoga, for four Sundays (October 8, 15, 22, and 29) at their 12PM class at Sumits Yoga at Broadway and Mineral in Littleton will donate 100% of the donations they receive to Dysautonomia International. Thank you to these businesses!
So it’s an exciting October for awareness in Colorado this year! Unfortunately, this year my body is the least cooperative it has been and its free fall continues. Nonetheless, I intend to make it to Dollars to Dysautonomia (at least for a cameo) and to see the lights (even if just a drive by)…these things don’t happen daily so I am determined to try to see my own efforts in action. After all, they say turquoise is a stone of protection and strength – and historically protects riders from injury due to falls, which sounds too apropos in my POTS world. Here’s to raising awareness and more dollars for dysautonomia!
PS. The news about Tom Petty broke after I originally wrote this post but right before I scheduled it. He is one of my favorite musicians so I have left the title the same and feel it is an ode to him. Speaking of music, what occurred in Las Vegas is horrific and my heart aches. My thoughts are with those impacted by this event – and those natural disasters around the world including Irma, Maria, and the earthquake in Mexico. The global news has not been pretty of late.